Monthly Archives: July 2013

EFPIA and PhRMA publish principles on clinical trial data sharing

The two largest pharmaceutical industry trade bodies have released joint principles for responsible clinical trial data sharing today. The principles include commitments that:

Every pharmaceutical company will set up independent boards to review requests from researchers for access to clinical trial protocols, patient-level clinical trial data and study-level clinical trial data.
Pharmaceutical companies will make […]

24th July 2013|

Pharma responses to leaked trade body strategy

Pharmaceutical company responses to leaked trade body strategy
23rd July 2013

We have asked all member pharmaceutical companies to confirm whether or not they support the strategy of trade bodies EFPIA and PhRMA “mobilising patient groups” in the debate about clinical trial transparency, as part of their “advocacy” strategy, as reported in the Guardian. These are the […]

23rd July 2013|

Patient groups respond to EFPIA and PhRMA leaked memo

Patient groups respond to EFPIA and PhRMA leaked memo
23rd July 2013

Two of the largest pharmaceutical industry trade bodies plan to mobilise patient groups in the debate on clinical trial transparency, the Guardian reported. A leaked memo from the European Federation of Pharmaceutical Industry Associations (EFPIA) and the Pharmaceutical Research and Manufacturers of America (PhMRA) sets […]

23rd July 2013|

Pharmaceutical industry bodies plan to mobilise patient groups

Two of the largest pharmaceutical industry trade bodies plan to mobilise patient groups in the debate on clinical trial transparency, the Guardian reports today. A leaked memo from the European Federation of Pharmaceutical Industry Associations (EFPIA) and the Pharmaceutical Research and Manufacturers of America (PhMRA) sets out their strategy, which begins with “mobilising patient groups […]

22nd July 2013|

Health Research Authority to go ahead with plans to promote transparent research

The Health Research Authority (HRA) today announced it will go ahead with its plans to promote transparency in research after receiving comprehensive support for its proposals. The HRA plan contains robust and practical methods for addressing the problem of lack of transparency in clinical trial results via registration of clinical trials, publication, dissemination, access to […]

16th July 2013|

We need your help

We need your help
15th July 2013

We launched the AllTrials campaign 6 months ago, and with your help it’s taken us where we never expected. Major organisations around the world are now taking this problem more seriously than ever before, and we have the opportunity to take practical action that could raise the level of clinical […]

15th July 2013|

Sile Lane from Sense about Science talks about AllTrials to Newstalk Radio

Síle Lane from Sense about Science spoke to Newstalk Radio in Ireland about AllTrials

12th July 2013

You can listen to the full interview on the Newstalk radio website (46mins).

12th July 2013|

Get involved

Ask everyone you know to sign the petition:

Sign the petition yourself.
Ask 10 of your friends, family and colleagues to sign the petition
Email everyone you know with a link to the petition: www.alltrials.net put it on your blog, put it on your Facebook page and Tweet about it

Spread the word:

Host the AllTrials web button on your […]

11th July 2013|

Are clinical trial data shared sufficiently today? No.

Are clinical trial data shared sufficiently today? No.
9th July 2013

Dr Ben Goldacre lays out what AllTrials is specifically calling for and responds to some of the arguments against clinical trial transparency.

You can read the full article in the BMJ here.

9th July 2013|

Full Disclosure Needed for Clinical Drug Data

Full Disclosure Needed for Clinical Drug Data
5th July 2013

An editorial in the New York Times today demands ‘Full disclosure needed for clinical drug data’.

You can read the full article here.

5th July 2013|